raining days and mondays

Ok, so its Wednesday  but, raining days do not get me down.  I love them!  There is less of a chance that I will get a hive with all that cloud coverage.  Though you would be surprised what UV rays still get through even when its raining. I know the UV is shining through before you even see the sun let alone I don't get to the point of sunburn.  Within minutes I can get  hives- sometime within seconds.   On Facebook, people always complain in their status about raining days.  It reminds me of a story in my bedtime Christian books I had as a child.  The child in the story has been praying to God that it wouldn't rain because she was going to have a birthday party outside.  But it rained anyway.  The child didn't understand why God didn't answer her prayers. It was pointed out to her that there had not been rain for a while and perhaps the farmers also prayed for rain. 


So, when you complain of rain, please think about all the good rain does.  It gives us drinking water, and waters our plants for food and beauty.  It allows me to not worry about the sun.   So here's the deal: You stop complaining about rain and cloudy days  and I won't complain about your lovely sunny days.  I know the world needs sun even if it is harmful to me.

 

I'm not a vampire

The first definition that popped up for vampire on my Google search:
(folklore) a corpse that rises at night to drink the blood of the living

Sorry folks, but that is not me.    Why do I get mistaken for a blood sucking corpse?  Well, I am allergic to light.  Yes, Light!  UVA, UVB and visible light (light bulbs).    I have been allergic since July 12, 2007.  It is called solar urticaria and it is life threatening.  I get hives and if I do not remove myself from the light source, I will go in shock.  I do not know why I have it and yes it is rare. No, I do not know if you can catch it  or if my children will get it.   No one really knows anything about solar urticaria.

I used to write about it all the time on Myspace back when Myspace was popular. It was who I became when I spiraled  into my identity crisis.  Total lifestyle change.  And then I was tired of  being just a Solar Urticarian. I am so much more: a mother, a wife, a Buddhist, a hard worker, a crafter,  a person.  So I stopped writing about it as much.  I rarely talk about it with people.  I really don't have to tell people. I want to be normal.   And I was maintaining pretty good for a while.  And then I had to have surgery.  I was beyond nervous and scared.  But oddly not of the surgery  but of the lights.  I was scared of the possibility of being "under" and not able to tell if I was reacting to the lights.  I imagined breaking out in hives under the bright lights, going in shock and dying.  

So I was more vocal about my allergy to the medical staff. I told everyone I came in contact with at the hospital.  And every time I mentioned it, the staff person looked at me like I had three heads.  I don't even think they took me seriously.  They even turned more lights on around me, which resulted in getting hives.  My hubby then turned off the lights. They didn't believe me.

This is why I started this blog.  If even the medical staff are not aware of solar urticaria, then clearly I am not doing myself justice by keeping quiet.  I am going to promote the hell out of my condition!  

So, here I am world!  Get used to me